From Cancer Patient to Cancer Survivor: Lost in Transition



2006 | 535 pages | PDF | 2.58 MB


This book focuses on survivors of adult cancer during the phase of care that follows primary treatment. The book raises awareness of the medical, functional, and psychosocial consequences of cancer and its treatment. It defines quality health care for cancer survivors and identifies strategies to achieve it. The book also recommends improvements in the quality of life of cancer survivors through policies that ensure their access to psychosocial services, fair employment practices, and health insurance.

With the risk of more than one in three getting cancer during a lifetime, each of us is likely to experience cancer, or know someone who has survived cancer. Although some cancer survivors recover with a renewed sense of life and purpose, what has often been ignored is the toll taken by cancer and its treatment on health, functioning, sense of security, and well-being. Long lasting effects of treatment may be apparent shortly after its completion or arise years later. The transition from active treatment to post-treatment care is critical to long-term health.

This book will be of particular interest to cancer patients and their advocates, health care providers and their leadership, health insurers, employers, research sponsors, and the public and their elected representatives.

Contents
PREFACE
EXECUTIVE SUMMARY
1 INTRODUCTION
Origins of the Study
Framework of the Report
2 CANCER SURVIVORS
Defining Cancer Survivors and Survivorship,
Characteristics of Cancer Survivors
Site-Specific Epidemiology
Summary
3 THE MEDICAL AND PSYCHOLOGICAL CONCERNS OF CANCER SURVIVORS AFTER TREATMENT
Overview
Site-Specific Review
Lifestyle Following Cancer Treatment
Findings and Recommendations
Appendix 3A!Examples of End-of-Treatment
Consultation Notes
4 DELIVERING CANCER SURVIVORSHIP CARE
Optimal Cancer Survivorship Care
Barriers to Optimal Cancer Survivorship Care
Models for Delivering Survivorship Care
The Infrastructure for Delivering Survivorship Care Findings and Recommendations
Appendix 4A!Summary of Articles Describing Recent U.S. Surveillance Practice Patterns, by Cancer Site
Appendix 4B!Information on Ambulatory Care Survey Data
Appendix 4C!What Has Been Learned About Models of Survivorship Care in Other Countries?
Appendix 4D!Challenges in the Delivery of Selected Survivorship Services
5 PROVIDERS OF SURVIVORSHIP CARE: THEIR SUPPLY AND EDUCATION AND TRAINING
Supply of Survivorship Care Providers
Status of Professional Education and Training
Support for Survivorship Education and Training Programs
Findings and Recommendations
6 EMPLOYMENT, INSURANCE, AND ECONOMIC ISSUES
Employment
Health Insurance,
Life Insurance
Findings and Recommendations
Appendix 6A!Description of the National Health Interview
Survey and the Medical Expenditure Panel Survey and the Methods Used to Derive Estimates of Insurance Coverage and Medical Expenditures Presented in This Chapter
7 RESEARCH
Survivorship Research
Mechanisms for Conducting Research
Challenges of Survivorship Research
Status of Survivorship Research
Findings and Recommendations
GLOSSARY
INDEX

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